lab pic

The Vasculitis Foundation sent this invitation to me to participate in a research study for PMR and they pay $100.00!  It says you need to live within 4 hours of Boston, which I do not.  But they go on to say that they will consider others outside of the area. 

I would love to help advance the knowledge of PMR, especially in the US where it seems to be misunderstood and ignored by the big research companies.  I hope that you too consider helping out!

Donna

 

 

Help Advance Polymyalgia Rheumatica (PMR) Research

from Home and Earn $100

 

Do you live within 4 hours of the Boston area?

 

Hello,

 

I am sharing this study opportunity with patients listed in our database who have indicated they have PMR and/or Giant cell arteritis. Right now the study is recruiting patients with PMR who live within 4 hours of Boston but may expand nationwide (USA) if we need more patients. I know some of you will not qualify or be interested in the study, but I did not want to miss anyone who might be interested. Thank you.

 

If you would like to update your information in our database, please contact me.

 

Have a great day and Happy 4th of July!

Joyce A. Kullman, Executive Director, Vasculitis Foundation

 

Study Announcement

 

The Vasculitis Foundation is reaching out to the Polymyalgia Rheumatica (PMR) patient community to raise awareness about an opportunity for patients to help advance research from home. You need to be 18 years of age or older with PMR to participate.

 

What is the goal of the research?

The goal of this study is to understand how PMR works on a cellular level which is an important role in the discovery of new therapies. This research can only be conducted with the participation of patients like you. 

 

Who can participate?

You may qualify to participate if you:

·        Are 18 years of age or over

·        Live within 4 hours of Boston, MA

·        Have been diagnosed with Polymyalgia Rheumatica (PMR)

 

What would I have to do to participate?

Patients who qualify can support research by providing a one-time blood donation from home. The blood sample will be collected by a mobile medical professional staffed by Sanguine Biosciences at a time that is mutually convenient and compensation of a $100 gift card will be provided.

 

The goal is to collect samples from 10 patients with PMR for research to be conducted by AbbVie. Access to these samples will allow researchers to evaluate blood markers, characterize cell subsets, and measure inflammatory responses in PMR patients. This data is necessary to understand how the disease works on a cellular level and helping advance the discovery of new treatments.

 

What precautions are being taken with regard to COVID-19?

With the concern regarding the spread of COVID-19, all mobile medical professionals will be provided personal protective equipment (PPE) including gowns, face masks, gloves, hand sanitizer, and alcohol wipes in order to protect our participants and staff against the spread of the virus.

 

To learn more or sign up, please visit https://sanguinebio.com/patients/study/pmr/

or call (818) 583-8844 to speak with a research coordinator and see if you qualify.

 

 

 

 

 

www.vasculitisfoundation.org

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